The RFA with general anesthetic has been scheduled for January 11. I am (to my dismay) scheduled for admission....with a chance I could go home the same day...so yes, let's concentrate on the chance of going home...but also have to plan for staying. Thanks to sweet friends and neighbors, Captain Adorable will be in good hands on January 11, so that is all ok. I am sure we can figure out care for subsequent days if it comes to that as well. I just wish I didn't have to stay in the hospital alone (which is what will happen if I have to stay overnight, since Captain Obvious will have to go home to care for Capt. Adorable, thus leaving me to fend for myself). I have such bad memories of staying at JHH after my first thoracotomy...
I called NCI and have to gather a bunch of records since they have requested. Once the records have been reviewed, they will call me to schedule an appointment. They've got a Phase I trial I might be able to participate in, but that is probably not what I want to do. The issue, of course, as always, is that in my case there is no standard of care because my cancer is non-standard. No one really knows the answer...
2 comments:
Perhaps a friend or relative could stay with you at the hospital?
Oooh, good idea! Any volunteers? :D
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