Monday, December 1, 2008

Email Correspondence

I wanted to send a really scathing email to my oncologist about this mess, but my FIL talked me down. Here's the email I sent:

from Rose
to Oncologist
date Mon, Dec 1, 2008 at 9:18 PM
subject Still No KRAS Data 8 Weeks Later


It looks like I will be dropped from the NIH NCI Pfizer study because of my lack of KRAS data. It has been 8 weeks since the KRAS test was ordered. Is there something I can do to get things moving?


Here is her response:

from Oncologist
to Rose
date Mon, Dec 1, 2008 at 9:30 PM
subject Re: Still No KRAS Data 8 Weeks Later

I was called about it today. They believe it is negative for mutation, but they are sequencing the genes to make sure.
Sorry about is crazy. It is not the norm.
I will let you know as soon as I hear anything definitive.

So, the one piece of info that is not awful is that the tumor is negative...this means that I would not qualify for the trial anyhow. So therefore, this 8 week wait which has resulted in me not being able to get into the study does not really matter since if the result is negative I could not have been accepted anyhow... so at least the lateness of the result did not destroy something I could have had...

Sigh. I've had a hard day with many tears of frustration and anger. I hate crying in front of my darling Captain Adorable. When he sees tears roll down my cheeks he touches them very gently with his finger tips. That always makes me stop.

1 comment:

Simone said...

Could be the pregnancy hormones, but I feel like popping your doctors in the teeth. Grrrr!!!