Wednesday, December 17, 2008

More Waiting...Sigh

My world has changed. I do not have much information to share here. However, here are a couple of relevant bits.

My maternal grandfather died, at age 40, of colon cancer. I do not have the symptoms of colon cancer (gas, abdominal pain, blood in stool, cramping, constipation) but remember, I didn't really have the symptoms of lung cancer either. I mean, yes, on occasion I have gas, abdominal pain, and cramping, but I think everyone gets those from time to time you know? Just a normal part of life.

In order to see if the test results are correct, the oncologist at NCI as scheduled me for a colonoscopy. I think Tuesday, but he is going to call back this afternoon to tell me and talk with me some more about this diagnosis.

I called the Univ. of Maryland oncologist and he said I could call back in a couple of days for his test results. No, I did not tell him about the results from NCI. I probably would have, but I am glad I did not because I want their testing to be independent, not to be done looking for a particular result.

Right now the plan is more waiting while we gather information. I think next Wednesday we are going to have a planning talk with my FIL and see where to go (literally and figureatively) from here.

5 comments:

Anonymous said...

Well, the change to colon and prognosis is wonderful news!

Take care of yourself! I will be keeping you in my thoughts and prayers.

Anonymous said...

Hugs momma.
Thanks for keeping us updated.
This is just amazing news with so much possibility for good things to come your way!
Always sending you guys lots of positive thoughts!

Gina Alsdorf said...

I cannot believe this. I hope you use your law degree to sue the crap out of the doctor that misdiagnosed you. I am hoping that you have many many treatment options available. You are in my prayers (this says a lot, I don't generally pray.)

Gina Alsdorf said...

I cannot believe this. I hope you use your law degree to sue the crap out of the doctor that misdiagnosed you. I am hoping that you have many many treatment options available. You are in my prayers (this says a lot, I don't generally pray.)

AP said...

I hesitated to write this because I don't want to be intrusive, but to follow up with Gina: I clerked for a year and know some number of malpractice attorneys. If you'd like a recommendation (I think you still have my email address), I'd be happy to give one.

You are still in my thoughts and prayers and we're rooting for you.